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100 Prozent aller Spenden für das Projekt Mine werden direkt für die Analyse und Kartierung von DNA-Profilen verwendet.

ALS Unit, Hospital Carlos III Madrid

The ALS Unit at Hospital Carlos III in Madrid and FUNDELA, the Spanish ALS Research Foundation, are partners in Project MinE and aim to sequence 750 DNA samples. If the project goes well in Spain, this goal could be increased to 1,000 DNA samples in the future.

The ALS Unit at Hospital Carlos III, part of the La Paz University Hospitals Complex, is the oldest and largest ALS Unit in Spain.  It provides integral care for patients from all over Spain as well as experimental therapies through clinical trials. The Unit works on and collaborates with other European centers in several research projects related to the search for biomarkers, genetic causes, quality of life issues, and measurement of progression. We are convinced that the causes of ALS can only be unraveled through international collaborations, such as Project MinE.

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Hospital Carlos III in Madrid

Meet our ambassadors

In Spain, we have several ambassadors for Project MinE.

  • D. Fernando Schwartz

    FUNDELA trustee, Former ambassador of Spain to The Netherlands, Writer and TV anchorman

    D. Fernando Schwartz

    FUNDELA trustee, Former ambassador of Spain to The Netherlands, Writer and TV anchorman

      As the aunt of an ALS patient, D. Fernando Schwartz is very involved in the ALS community.

      He is a former ambassador of Spain to the Netherlands and previously to Kuwait and Bahrein, and retired from diplomatic service to join  Spain’s foremost daily, El País, to write leaders on international politics. In 1992, after a stint as communications director of the parent company, Prisa, Fernando became anchorman in one of TV’s most successful daily talk shows, Lo+Plus. As a writer, he is the author of 15 novels, one of which, The Misencounter, was awarded the Planeta Prize. The novel told of the tragedy of a woman affected by ALS. The actual character was Schwartz’s maternal aunt.

    • María Teresa Solas

      FUNDELA trustee, ex President of the Spanish ALS association, Prof. of Cellular Biology at the Universidad Complutense of Madrid

      María Teresa Solas

      FUNDELA trustee, ex President of the Spanish ALS association, Prof. of Cellular Biology at the Universidad Complutense of Madrid

        As the daughter of an ALS patient, Prof. Solas is very involved in the ALS community.

        In her research she has directed doctoral thesis on various aspects of ALS as well as publications on an experimental model of sporadic ALS.

      • D. Adolfo Martínez

        FUNDELA trustee, Entrepeneur, Director of administrative boards of several companies

        D. Adolfo Martínez

        FUNDELA trustee, Entrepeneur, Director of administrative boards of several companies

          As the husband of an ALS patient, D. Adolfo Martínez is very involved in the ALS community.

        • Fernando Torres

          International football player

          Fernando Torres

          International football player

          The Spanish international football player Fernando Torres is proud to be ambassador for Project MinE and the fight against ALS. Fernando is forwarder of the Spanish National team (already 110 times), he’s won the Nation’s World Cup, the Nation’s European Cup twice, the Europe Champion’s League and the UEFA Europe’s League. Fernando played with Liverpool, Chelsea, AC Milan and currently again with Atlético de Madrid.

          Fernando Torres presented a 2016 calendar to raise funds for FUNDELA and ProjectMinE. Read more.

        • Carlos Matallanas (†)

          journalist and semi-professional football player

          Carlos Matallanas (†)

          journalist and semi-professional football player

          Carlos Matallanas (Madrid, 18-4-1981) was balancing his career as a journalist with his activities as a semi-professional football player when, in June 2014, he was diagnosed with ALS. From that moment on, he has devoted his efforts to the search of a cure for this neurodegenerative disease. Sadly, he past away March 2021.

          Through his blog, Mi batalla contra la ELA (My struggle against ALS), he was determined to raising awareness on the degradation of the body as a consequence of ALS, a disease that could affect any of us. Carlos Matallanas pinned his hopes on Project MinE, raising funds through the FUNDELA foundation and, with the help of friends and family, organizing multiple events.

          “The funds raised are not for me, they’re for all of us, for those that are already sick as well as for those that have not yet been affected by this terrible lottery that is ALS”

        • Javier Matallanas

          journalist and semi-professional football player

          Javier Matallanas

          journalist and semi-professional football player

          Javier has combined the studies and then the profession of Journalist with a modest but intense career as a semi-professional footballer in Madrid and Andalusia. In 2007 he joined the Sports section of El Confidencial. In 2014, at the age of 33, being coordinator of the section and still as an active player, he is diagnosed with Amyotrophic Lateral Sclerosis (ALS), a serious neurodegenerative disease.

        May we introduce our experts?

        Project MinE research in Spain is performed at the ALS Unit at Hospital Carlos III in Madrid.

        jesussantos.mora@salud.madrid.org or +34(0)914532675

        • Jesús S. Mora Pardina

          Chief Neurologist and Director ALS Unit at Hospital La Paz-Carlos III, Madrid

          Jesús S. Mora Pardina

          Chief Neurologist and Director ALS Unit at Hospital La Paz-Carlos III, Madrid

          Prof. Pardina is chief neurologist at Hospital La Paz-Carlos III. He has been trained at Massachusetts General Hospital and Tufts Medical Center in Boston. At the ALS Unit in Madrid, he and his staff have dedicated their efforts to improve the quality of life of Spanish patients after a long and persistent struggle to introduce the concept of high resolution integrated multidisciplinary care, the need of experimental treatments and patients associations support in Spain.

        • Spain

          Our partners

          In Spain fundraising for Project MinE is led by FUNDELA (Fundación Española para el Fomento de la Investigación de la ELA).

          @FUNDELA1
          facebook.com/fundelaoficial

          A big thank you to everyone who has contributed to Project MinE

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