A technology consultant who specializes in security and risk at the multinational business corporation Accenture, Josh von Schaumburg has a personal connection to ALS. In June 2013, doctors diagnosed his older brother, Eric, with the sporadic bulbar form of the disease just weeks before Eric’s thirtieth birthday. In addition, one of his Dutch colleagues at Accenture, Garmt van Soest, was also diagnosed with ALS around this time.

Through his work, Von Schaumburg has collaborated with Accenture employees across the globe on several initiatives supported by Van Soest which aim to support the ALS community, particularly through Project MinE. Von Schaumburg currently serves as key liaison for Accenture between Project MinE in the U.S. and Europe.

Von Schaumburg is also working with his colleagues at Accenture on a “crowdfunding” campaign, whereby his co-workers in the U.S. will have the opportunity to help fund a venture such as Project MinE via Accenture’s new Corporate Citizenship fundraising platform. He is also enlisting his IT colleagues to volunteer their time and talents to help design the infrastructure for data storage/genome analysis, which will be housed at Project MinE’s headquarters in the Netherlands, and which Van Soest is supporting. Accenture is a company known for its ability to solve complex business problems; Von Schaumburg and Van Soest just see ALS as another global problem Accenture is helping to solve!


Josh & Eric von Schaumburg

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