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The Muscular Dystrophy Association of Slovenia & the University of Ljubljana

The Muscular Dystrophy Association (MDA) and its activities in the field of ALS

The Muscular Dystrophy Association (MDA) of Slovenia was established in 1969. It is an interest union of persons with progressive neuromuscular disorders (NMD) as well as their parents, physicians and other supporters. Since Slovenia is a relatively small country with a population of only two million, the Muscular Dystrophy Association of Slovenia also represents persons with ALS. This enables us to unify our efforts in achieving the desired programmes and goals such as reliable diagnosis, new treatment methods, preservation of general health and resolving the problems caused by severe disability that sooner or later leads to permanent dependence on personal assistance and technical aids. In 2002 persons with ALS and their relatives and physicians held the first joint meeting where they set up the ALS Committee within the Muscular Dystrophy Association of Slovenia.

ALS Center Ljubljana

The ALS Center Ljubljana was established in 2002 at the Institute of Clinical Neurophysiology, University Medical Centre Ljubljana. The multidisciplinary team offers clinical care for most of the Slovenian patients with ALS. The main research interests include neurophysiology and neuroimaging of ALS. The Ljubljana Institute of Clinical Neurophysiology (ICN) was formally, as a unit on its own, established in 1969, but had been, in the form of a neurophysiology laboratory at other departments, in fact active already more than 10 years earlier. At that time, clinical electrophysiological methods were among the most powerful and prosperous tools in the research of peripheral and central nervous system in humans and were quickly gaining their importance also as routine diagnostic procedures. Both of these aspects as well as clinical neurological programmes constituted and still represent the core of the institute’s functioning.

ALS goodwill ambassador of project MinE

  • Slovenia

    Our experts

    • Boris Rogelj

      Jožef Stefan Institute | IJS · Department of Biotechnology, University of Ljubljana, Slovenia

      Boris Rogelj

      Jožef Stefan Institute | IJS · Department of Biotechnology, University of Ljubljana, Slovenia

      Boris Rogelj is associate professor at the Jožef Stefan Institute in Ljubljana, Slovenia. He is a molecular biologist/biochemist researching the molecular processes underlying neurodegenerative diseases. His focus is on the pathological RNA-protein interactions and mechanisms underlying ALS and frontotemporal lobar degeneration (FTD).

    • Blaž Koritnik

      Neurologist at the Ljubljana University Medical Centre

      Blaž Koritnik

      Neurologist at the Ljubljana University Medical Centre

      Blaž Koritnik is neurologist at the Institute of Clinical Neurophysiology Ljubljana University Medical Centre, Slovenia. The Ljubljana ALS Center was established in 2002 at the Institute of Clinical Neurophysiology. The multidisciplinary team offers clinical care for most of the Slovenian patients with ALS. The main research interests include neurophysiology and neuroimaging of ALS. The centre hosted the ENCALS meeting of 2017.

    • Janez Zidar 

      Prof. at the Institute of clinical neurophysiology · Neurology Clinic - Ljubljana University Medical Center

      Janez Zidar 

      Prof. at the Institute of clinical neurophysiology · Neurology Clinic - Ljubljana University Medical Center

      Dr. Janez Zidar is director of the Ljubljana ALS Center. The Ljubljana ALS Center was established in 2002 at the Institute of Clinical Neurophysiology, University Medical Centre Ljubljana. The multidisciplinary team offers clinical care for most of the Slovenian patients with ALS. The main research interests include neurophysiology and neuroimaging of ALS. The centre hosted the ENCALS meeting of 2017.

    Our partner

    Fundraising for project MinE Slovenia is performed by the Muscular Dystrophy Association of Slovenia.